End of life and serious illness
MAID, palliative care, hospice, advance directives, grief, and state effective dates.
·Care Policy Radar · Updated 2026-06-18
A readable feed of policy and systems changes that affect families, caregivers, care organizations, advocates, and the burden around care. It turns legislation and regulatory movement into plain-language briefs about what changed and where action could matter.
InvisibleBench AI-supported care contextNext: NIH National Plan to End Parkinson's implementation (Advisory Council meeting June 29, 2026)
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New Jersey's CARE Act and hospital licensing rules require hospitals to offer eligible patients an opportunity to designate a caregiver and receive discharge-related training or instruction.
New York law requires hospitals to offer patients a chance to identify a caregiver and to involve that caregiver in discharge-related notice and after-care instruction when consent rules are met.
Consumer health data regime relevant to non-HIPAA health, mental health, and caregiving applications.
Consumer health data law relevant to non-HIPAA mental health and caregiving applications.
New Jersey's Domestic Workers' Bill of Rights applies workplace protections to many in-home care and household workers, including workers caring for older or disabled people in private homes.
CMS is implementing the GUIDE Model for dementia care, including care navigation, caregiver training, 24/7 support lines, and respite services for eligible participants.
HHS finalized updated Section 504 rules for HHS-funded health programs, including disability nondiscrimination protections for medical treatment decisions and accessible health services.
Federal law reauthorized BOLD dementia public-health infrastructure, which supports state and local dementia risk reduction, early detection, and caregiving programs.
Requires health facilities and clinics to include a GenAI disclaimer for patient health-status communications unless reviewed by a licensed or certified provider.
VA is implementing the Elizabeth Dole Act, a broad veterans package with caregiver, home-care, benefits, and access provisions.
New York S3599 would require DOH to set regional minimum hourly base reimbursement rates for home-care providers employing home-care and personal-care aides.
The bipartisan Credit for Caring Act would create a federal tax credit for eligible working family caregivers.
The ABC Act would require CMS and SSA to review and simplify forms, processes, and communications that family caregivers use to navigate major federal benefit programs.
New Jersey's nursing-home staffing-ratio law is paired with public staffing reports and Medicaid enforcement activity for serious staffing-violation cases.
Restricts AI systems programmed to provide professional mental or behavioral health care, including marketing and direct care interactions.
Restricts AI in therapy and psychotherapy, reserves therapeutic services for licensed professionals, and creates civil penalties.
New York continues implementation of Consumer Directed Personal Assistance Program changes that affect how consumers and personal assistants register, document, and get paid.
CMS revised hospital survey guidance for discharge planning, including guidance relevant to caregiver or support-person involvement and safe post-discharge transitions.
The FAMILY Act would create federal paid family and medical leave benefits, including leave to care for a qualified family member with a serious health condition.
CMS moved Medicare hospice quality reporting from the Hospice Item Set to the HOPE patient assessment workflow for relevant admissions, update visits, and discharges.
Defines AI companions around sustained human-like relationships, prior-interaction memory, emotion-based questions, and personal dialogue.
New York's 2026 Paid Family Leave rates set the maximum weekly benefit and employee contribution cap for workers taking family-care leave.
New Jersey's 2026 Family Leave Insurance rates set the weekly benefit cap for workers taking paid leave to care for a seriously ill or injured loved one.
Adds child-safety restrictions involving responsive generative communication and AI-enabled interaction with minors.
Requires companion chatbot disclosures, suicide and self-harm safeguards, protections for minors, and reporting obligations for operators.
Restricts AI systems from representing themselves with licensed health-care titles or implying licensed clinical authority.
Creates a state AI regulatory framework, disclosure requirements for certain AI users including health care service providers, prohibited AI uses, enforcement, a sandbox, and an AI council.
New Jersey's Medicaid Personal Preference Program is running fiscal-intermediary transition resources and workgroups for self-directed personal care participants and workers.
CMS issued an interim final rule removing the 2024 federal 24/7 RN and HPRD minimum staffing provisions after a public-law moratorium and litigation changed enforceability.
Federal lawmakers reintroduced legislation to create a supplemental Medicare payment for multidisciplinary ALS care.
Congress reauthorized the federal Lifespan Respite Care Program through fiscal year 2030 and clarified that caregivers under 18 may be eligible for respite services.
New York law requires nursing homes to maintain minimum staffing hours and follow direct-care spending rules with audit and recoupment mechanisms.
New York bills would create a statewide advance care planning public awareness campaign and community-based outreach grants.
New York bills would strengthen identification, documentation, counseling, referral, reporting, and demonstration-project rules for palliative and hospice access.
New Jersey implemented a Medicaid/NJ FamilyCare community-based palliative care benefit for members with serious health conditions, available alongside current treatment.
NIH is leading implementation of the National Plan to End Parkinson's Act, including an advisory council and national planning process for Parkinson's research, care, and services.
Regulates mental health chatbots, including representations about psychotherapy or treatment and conduct by chatbot suppliers.
Restricts artificial intelligence systems from representing themselves as licensed mental-health professionals or providing certain professional mental-health services.
New York signed S.138/A.136 and is moving from passage to implementation for terminally ill adults who may request medical aid in dying.
New Jersey is preparing members for federal Medicaid eligibility changes that begin in fall 2026 and continue into 2027.
CMS issued an interim final rule for a new Medicaid community-engagement condition for certain adults, with state implementation generally due by January 1, 2027.
New York enacted an ALS and motor neuron disease registry with provider reporting, patient notice, opt-out, confidentiality rules, and a public website deadline.
New York enacted a frontotemporal degeneration registry and directed DOH to publish registry information and family resources through a public webpage.
Requires clear and recurring AI companion disclosures, minor protections, limits on manipulative engagement, self-harm protocols, and public protocol reporting.
Includes companion chatbot duties, including notice, protections around sustained engagement, and safety expectations for vulnerable users.
Requires notice that users are interacting with artificial output, self-harm detection and response protocols, minor safeguards, annual reports, and user actions for ascertainable harm.
Repeals and reenacts Colorado AI Act provisions as an automated decision-making technology framework with transparency and consumer-rights obligations.
Adopts conversational AI safety requirements for public conversational AI services, including disclosure and youth-safety obligations.
Adopts the Conversational Artificial Intelligence Safety Act, defining public conversational AI services and related operator obligations.
Adopts public conversational AI service requirements, including operator duties for disclosure and safety.
Creates duties for public conversational AI services, including disclosure and child-safety requirements for certain AI interactions.
CMS is phasing in national Medicaid access requirements for HCBS reporting, service timeliness, waiting lists, and direct-care payment standards.
Requires clear and conspicuous notice when an AI chatbot may mislead a reasonable consumer into believing they are engaging with a human.
Public Law Chapter 687 regulates the use of AI in providing certain mental health services and limits therapy or psychotherapy use to licensed professional oversight.
Would establish protections for consumers interacting with artificial intelligence chatbots.
Would regulate the use of AI and other software tools in healthcare decision-making.
Would establish consumer health data protections relevant to non-HIPAA care and wellness applications.
Revises privacy law related to biometric, genetic, and neural data.
Would have regulated chatbot use by minors; deferred to the 41st legislative day.
Would have required notice to consumers interacting with human-simulating chatbots or computer technologies.
Would establish requirements for artificial intelligence chatbot technology.
Would regulate use of artificial intelligence in psychotherapy services and provide civil penalties.
Would modify the Minnesota Consumer Data Privacy Act to treat consumer health data as sensitive data and add protections.
Would regulate use of AI to deny prior authorization for medical necessity or experimental status.
Would have regulated AI systems that simulate humanlike relationships with children; failed to pass in 2026.
Tracked as a direct companion chatbot bill with disclosure and safety implications for AI systems that simulate relationship-like engagement.
Defines consumer health data to include data used to identify a consumer physical or mental health condition or diagnosis.
2026 bill analysis describes disclosure duties and restrictions for operators that make companion chatbots available to certain minors.
Would regulate companion AI chatbot operators, including disclosure, minor-safety, and crisis-response obligations.
House companion proposal covering AI chatbots used for companionship or relationship-like engagement.
Prohibits providers from using an automated process, system, or tool to submit a health benefits claim without review by a provider or another responsible person.
Would regulate the use of artificial intelligence in therapy services.
Would regulate the use of artificial intelligence by health insurers.
Proposed chatbot disclosure bill in consumer transactions.
Minor-focused AI chatbot safeguard proposal advanced by the Pennsylvania Senate in 2026.
Would regulate companion chatbots and establish user notice and safety expectations for AI systems that simulate relationship-like engagement.
Proposed bill regulating therapeutic chatbots and social AI companions.
Defines mental health chatbots, requires AI and non-human disclosures, limits sale/sharing of user input and health information, restricts targeted ads, and creates policy and documentation requirements.
Defines companion AI chatbot around companionship or mental-health therapeutic communication and proposes related safeguards.
Would regulate companion AI chatbot operators and safety obligations for AI systems used for companionship or therapeutic communication.
Would regulate companion AI chatbot operators, including disclosures and safeguards around minor users and therapeutic communications.
Would limit use of AI and AI technology to deliver mental health care, while allowing certain administrative support functions.
Would require companion chatbot disclosures, suicide and self-harm response protocols, and related operator obligations.
Would regulate chatbot personal-data practices and requirements for consumer-facing chatbot systems.
Would require disclosures and related requirements for artificial intelligence services.
Would have created chatbot safety requirements; action was postponed indefinitely in January 2026.
Would regulate artificial intelligence companions, minors, safety requirements, and civil penalties.
Would require AI operator disclosures, preventive measures for minor account holders, prohibitions, attorney general enforcement, and civil penalties.
Would require informed consent for AI use by licensed mental health professionals or health care providers and define authorized and prohibited uses.
Would require age verification for companion chatbots, loyalty-oriented safeguards for widely used chatbots, crisis resource actions, and incident reporting.
Tracked as pending AI chatbot regulation in 2026 state legislation trackers.
Would regulate mental health chatbots that use artificial intelligence technology.
Would provide protections for minors regarding use of chatbots.
Would regulate the use of artificial intelligence by health care providers.
Would have prohibited use of artificial intelligence in professional mental and behavioral health care.
Regulates the use of artificial intelligence by health care plans in coverage or care-service determinations.
Would require chatbot age verification, safeguard protocols, therapy-chatbot requirements, and enforcement paths.
Would restrict certain disclosures, transfers, and uses of biological or neural data by health and fitness apps without express consent.
Would regulate chatbot systems and related consumer protections.
Would establish protections for children from chatbot harms.
Would regulate artificial intelligence in therapy or psychotherapy contexts.
Introduced/proposed AI disclosure bill tracked as an adjacent transparency signal.
Would have required companion chatbot platform disclosures, safety protocols, age verification actions for minors, reports, and consumer enforcement paths.
Federal proposal targeting companion AI chatbots used by minors, including restrictions on access and harmful dialogue.
Federal proposal defining AI companions and focusing on minors, non-human disclosure, age verification, and sexual-content harms.
Federal proposal to prohibit covered chatbot operators from making available minor-simulating chatbots that engage in sexually explicit conduct or conversation.
Federal proposal including chatbot crisis-resource disclosures and a four-year longitudinal study of chatbot mental-health risks and benefits for minors.
Final rule updates health IT certification and includes algorithm transparency requirements for certified health IT.
Proposed federal rule to strengthen cybersecurity requirements for electronic protected health information.
Final rule restricting certain transactions involving U.S. sensitive personal data and government-related data with countries of concern.
source-backed policy rows
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AI lane jurisdictions tier 3+
40 / 51
AI lane enacted or scheduled
21 / 51
linked source records
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Radar scope
GiveCare tracks policy and systems changes that alter what families, advocates, care organizations, and partners have to understand, decide, document, or fight for. AI policy is one lane inside the broader care systems feed.
MAID, palliative care, hospice, advance directives, grief, and state effective dates.
ALS, Parkinson's, dementia, neurodegenerative disease, registries, disability access, and specialty-care pathways.
Paid leave, tax credits, respite grants, family caregiver supports, and direct cash relief.
Medicaid HCBS, CDPAP, paid family care, direct-care workforce, respite, and in-home service capacity.
Medicaid, Medicare, VA supports, eligibility rules, appeals, coverage limits, and program navigation.
Caregiver access, proxy authority, guardianship, privacy, discharge rights, and decision documentation.
Chatbot regulation, clinical AI, biometric access, surveillance, health-data use, and algorithmic eligibility.
Hearings, comment periods, sign-on letters, advocacy days, sponsors, committees, and coalitions.
The practical dates and rules that change what families, care orgs, or advocates can do.
Impact taxonomy
The radar reads each item for the pressure it creates or relieves: family psychology, access, legal authority, disease pathways, service capacity, data exposure, advocacy timing, and implementation reality.
Policy mechanics
The radar classifies each item by how change actually happens. A passed law matters less if implementation is years away; a comment period or budget line can be the place where advocates still have leverage.
Initial filters
Impact route
AI / data / privacy lane
The first populated lane tracks state and federal AI, chatbot, health-data, and disclosure rules that may shape caregiver support tools.
Scope
AI/data/privacy lane: 50 states plus DC; federal context below.
Publication rule
Official source preferred; tracker items are labeled.
Boundary
Research map only. Not legal advice.
Care standard
State bills are converging on disclosure, minors, self-harm, therapy boundaries, and sensitive data. Caregiving systems also need to account for benefits access, family burden, serious illness decisions, and implementation dates families actually feel.
Recurring AI/not-human disclosure and resistance to identity ambiguity.
Self-harm detection, crisis referrals, escalation protocol, and public reporting.
Controls for dependency cues, manipulative engagement, minors, and simulated intimacy.
Consumer health data limits, health AI transparency, impact assessment, and human review.
Federal AI/data context
Federal signals are split across chatbot/minor bills, health IT transparency, HIPAA cybersecurity, and sensitive data rules. The broader radar also tracks federal caregiver support, benefits access, and disease-specific bills.
Federal proposal targeting companion AI chatbots used by minors, including restrictions on access and harmful dialogue.
Source links
Federal proposal defining AI companions and focusing on minors, non-human disclosure, age verification, and sexual-content harms.
Source links
Federal proposal to prohibit covered chatbot operators from making available minor-simulating chatbots that engage in sexually explicit conduct or conversation.
Introduced June 10, 2026 by Sens. Husted, Coons, Cassidy, and Murphy; draft bill text posted by Sen. Husted.
Federal proposal including chatbot crisis-resource disclosures and a four-year longitudinal study of chatbot mental-health risks and benefits for minors.
Source links
Final rule updates health IT certification and includes algorithm transparency requirements for certified health IT.
Source links
Proposed federal rule to strengthen cybersecurity requirements for electronic protected health information.
Source links
Final rule restricting certain transactions involving U.S. sensitive personal data and government-related data with countries of concern.
Source links
Method
0 raw civic signals were fetched for the AI/data lane on 2026-06-17T12:04:20Z. Raw results are treated as discovery, then normalized before publication.
Published entries prefer state legislature, agency, Federal Register, Congress.gov, or official bill text. Tracker sources are marked where the official source is still being resolved.
Items belong when they change what families, advocates, care organizations, or partners have to understand, decide, document, or fight for. AI, data, and privacy are one lane inside that broader scope.
This is designed as a monitored policy layer. New civic sweeps should feed a review queue before the public map changes tier or status.
Changelog
Material updates are logged here so source coverage, lane scope, and tier movement can be audited over time.
2026-06-17
Ran the civic policy sweep for post-June-5 signals and added one official federal adjacent signal from a targeted web cross-check.
2026-06-05
Reviewed every state and DC, expanded the public layer to 45 non-baseline jurisdictions, and left Alaska, Arkansas, Delaware, North Dakota, Wyoming, and DC as baseline pending new targeted signals.
2026-05-20
Started the civic discovery window used by the public policy map and normalized visible items against state, federal, and legislative-tracker sources.
Monitoring queue
Proposed direct AI/data bills are kept visible even before enactment because they show where states are defining the risk perimeter.
Massachusetts has active chatbot, health-care AI decision-making, and consumer-health-data proposals.
Minnesota has active proposals for AI chatbot requirements, minor chatbot access, AI psychotherapy regulation, and consumer-health-data protections.
Wisconsin has active health-AI prior-authorization proposals, while earlier child relationship-AI bills failed this session.
Michigan has a 2026 companion chatbot proposal in the review queue.
Rhode Island has 2026 companion AI chatbot legislation in the active proposal layer.
Ohio has active proposals regulating AI in therapy services and health-insurer AI use.
Pennsylvania proposals cover chatbot disclosures and minor-focused AI chatbot safeguards.
New Jersey has proposed legislation focused on companion chatbots, therapeutic chatbots, and social AI companions.